Come along and follow our journey of being what we think is Normal..... just a average family, following God's calling and a life blessed with Down Syndrome

Friday, June 20, 2008

My friend Emma's daughter ive been posting is the latest update...

We have a HEART surgery date!
August 14th, 2008 will be a big day for lil' Miss! Emma is having her heart fixed!!! It's a bit later than we were hoping for but when you've got a great surgeon and he's booked up, you WAIT.

We are so excited to have a date on the calendar to know when we'll be doing that for her to be able to see the "other side" of that date!Unfortunately, this is going to mess with school, etc. for K and E because school starts around that time. Also, it means Emma won't be able to start school until mid-October (I know, technically she could go back earlier, but MOMMA says no school 8 weeks post-op. That was what we did for Brianna with nursery, so it only makes sense that she not go to school until she's outside of the risk period.)

One last thing- the MRI of her brain is the only thing that might have them call off the heart surgery. PLEASE pray tht it comes back clear!! We won't hear anything on that front for a week or two since her surgery is so far out. I don't think they're going to 'hurry up' with it since she's not an immediate surgery now.

Thanks for those that asked about Micah. He's doing MUCH better! His runny nose has all-but stopped (just a little run not 10 boxes of tissues/day) so he's all clear to stay and play. Kristopher complained of a sore throat last night but then has been fine today, so who knows.

Emma's much more comfortable now, chewing on a bib rather than grinding her teeth, and hopefully will decide to nap soon. She's REALLY tired! Still no drinking...

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