Come along and follow our journey of being what we think is Normal..... just a average family, following God's calling and a life blessed with Down Syndrome

Wednesday, July 2, 2008

Update on Kennedy


Per her mom and their blog:

Here is Kennedy in her halo. She is in quite a bit of pain right now. They have morphine ordered, but it's not here yet :(. She is asking for water, which she's not allowed to have until tomorrow, but they've let us swab her mouth with a little bit of water so her throat is not so dry. She is really a mess right now... she has marker all over her and over 25 needle sticks covering her arms and legs where they tried to get IVs in. She has an IV in one arm and one foot, a catheter, a drain from the back of her head and from her hip where they took the bone. Both drains are slowly filling with blood... she did not need a transfusion during surgery which is a good thing! The halo has 8 pins... 4 in the front and 4 in the back... the biggest problem?! We came in to find her COVERED in techaderm even though I told them REPEATEDLY that it tears her skin off. We've had this issue at Vandy before too. I don't get it. They put it in writing, I saw them! I'm trying VERY hard to not freak out, but I just don't understand. Her cheeks are already blistering under the foam tape that is now holding her nasal cannula in... hopefully we got it off fast enough so her skin will stay in tact and not become infected. She also had techaderm on her thighs and it's over both IVs... they won't remove it from the IVs so I am going to have to ask for a consult with wound care so we can counteract the damage it's doing. It really just makes me want to scream. Anyway, she is floating in and out of sleep right now... when she's awake, she's crying, so hopefully the pain meds will get here soon! That's all for now, I'll update again when anything changes.

4 nice people had this to say:

William Michael said...

wow, this little girl brought tears to my eyes.

Anonymous said...

praying for her and the family. thanks for keeping us posted on her.


Anonymous said...

that seriously wants to make me cry.
i know that i couldn't stand to see Giovanna in pain when we would take her to the hospital. i can't even imagine the pain Kennedy is going through.
it brings chills to my body to try and think about it.

this little girl has done nothing to deserve the pain she's experiencing.
I HOPE it is all done soon <3


Mommy to those Special Ks said...

Thank you so much for all the continued prayers for Kennedy!! We appreciate it more than you know! :)