Come along and follow our journey of being what we think is Normal..... just a average family, following God's calling and a life blessed with Down Syndrome

Thursday, December 4, 2008


Yesterday we took all the girls to the ENT. After waiting for almost and hour and half William was ready to go...when i asked they said we were next...Our appt was at 245 and we didnt leave there until 515! So needless to say, after you read the story of our ENT appt you will see we did NOT get to go see Jolly St Nick! We took the girls to McDonald's right by the Dr, William and the 3 big girls went inside to eat, and I stayed in the truck with Bella....SCREAMING!

Gabby, giovanna and Bella all had appointments. Well it wasnt all full of joy like I'd hoped it would be. Giovanna PRAISE GOD finally passed hearing test, but still has some slight hearing loss for low frequency but overall did very well. Her wax build up wasnt bad either and they could see BOTH tubes still in place!!!!

Isabella oh wow that is another story!!!!!! Both her ears were so badly compacted with wax. They had to put her in the papoose! IT was torture! They worked on one ear and after like 30 min they said they would not do anymore because she was screaming like mad, had broke loose from the papoose (if you seen one of these you would be shocked, its like a large velcro straight jacket) and that the wax in the left ear was way too deep and too hard of we get to be put to sleep next Wednesday to have ears cleaned out and a possible new set of tubes in there if they are no longer functionable.

After Gabby had her hearing test and PASSED the Dr looked into her ears and said " We will put her to sleep as well to clean her ears" after doing what we had done with Bella he didnt want Gabby to go through the same thing . So she too will be put to sleep next Wed for her ears. No tubes needed since she hasnt had ear infections and she passed her test....just tons of hard build up.

WOW! Has anyone else gone through this with their kiddos? How do you keep the wax build up DOWN? WE do clean out ears,but you can only go so far......

Nervous Momma

4 nice people had this to say:

The Sapersteins said...

My sister had problems like this when we moved to Alabama (she was about 13-14) and we were told it was because of the big weather change and that it was common in the south for the wax build up like that for someone who isn't use to that weather. I guess the humidity? I dont really know, but anyways, they had to clean her ears like once a week I think, where she went in and they suctioned it out with the warm water. I got the stuff and you can do that at home, it is painless, but you may not want to try it since the girls reacted that way. It's the same thing that they do in the doctors office I think. I don't know what to do to keep the wax buildup down other than that. Hope this helped

Jenny said...

Poor babies...poor momma!!! I'll keep you guys in my prayers next week.

Allison said...

Bless your hearts. I'll be praying for ya'll. So funny that you emailed when you did. DH is ready to ADOPT!! I didn't ask him, I had pretty much given up. We're gonna be putting in our application in the next month or so for an HIV+ toddler girl. We haven't told the fam yet (which is why I haven't blogged about it) because they've been up and down with us so many times in the past so we're waiting till the ball is rolling before we tell them but we are SOOOO excited!!!!

Susan Smith-Alltop said...

Hi BFF, Call me. Love you!