The Endocronologist(sp) called me today to give me Gabby's report....she said her thyroid was within the normal limits with her being on the right dosage of Synthroid, she tested NEG for celiac, BUT her growth hormone is 1 point away from being in the low. She did say that she would qualify for growth hormone therapy but did tell us to research it and then decide. She said it has been noted that females with DS have a larger chance of getting Lukemia.
So anyone out there have any suggestions for us and or have been through growth hormone with their daughter with DS???
Have a blessed day
Monday, October 29, 2007
Praise report!
Posted by Rita Andrews at 10:01 PM
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2 nice people had this to say:
Yay! And hmm... I'd never heard a connection between Leukemia and growth hormone. I posted your question on Downsyn. Here's a link where you can read any replies. You don't need a log-in to read, but you will to comment. Or you can just have me comment back. Best of luck!
http://www.downsyn.com/phpbb2/viewtopic.php?t=30014
Our son has always been in the fifth percentile for height. The dr. was reluctant to go with growth hormone because of potential side effects. She just looked at his growth curve to see whether it was within the normal range.
Good luck to you! I'm sure there are people out there with expertise on this subject.
By the way, Meredith, thanks for the link to Downsyn. I had never heard of it before. It's quite interesting!
Carolyn
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